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CESSG Questions & Answers

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Have you or a loved one been diagnosed with CES?

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CESSG Questions & Answers
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Re: Pain Clinics

Jamielynn

Yes, I have given birth and the two are like comparing apples and oranges; pain but at the end of the first you have a little bundle of joy - CES just begets more pain!

I just wish this forum was what it used to be in earlier days when we members were like one big family that supported one another through the tough times when pain overwhelmed and the prognosis was not what we wanted.

I think part of what you see as a runaround by doctors and pharmacies is not only dictated by federal laws but each state has its individual laws that complicate the process; in my state new laws were passed that make it even more stringent for doctors or pharmacies to prescribe pain medication that works for nerve pain. For instance, my doctor CAN write a prescription for an opiate but the glitch is that the minute it reaches a pharmacy, it goes into a huge data base which alerts everyone that an opiate has been prescribed. So while he CAN write the prescription, what it means is that he would lose his license to practice medicine if he did so. The result is that his hands are tied and the real patients suffer.

Two questions: have you thought of what I will call a pain pump? They are implanted and are often used to relieve pain in certain disease like cancer. I don't know their status now with the new laws but they are implanted at the site where the pain originates...they block the pain signals rather than use drugs. Technology has improved that sort of device greatly in the past ten years or so. (YOU can research them on-line). The second question doesn't seem to gain much traction, I guess because it sounds too old fashioned and simple, how could something that simple and cheap bring temporary relief for nerve pain? Thera bead pads do work well to bring temporary pain relief, they are not expensive, and mine will undoubtedly still be working when I am gone. There is nothing to wear out, no electricity, no batteries. All you need is a microwave to zap them. If nerve pain strikes, the sooner the heated pad is applied to the pain point the sooner the relief. They emit what can be scalding steam but they cool rather quickly so it is best to have a couple on hand. The real secret is to put them between your lower back and the back of your recliner chair where it fits snuggly, you lean back against the pad so it is in full contact with where the pain originates. That method retains the heat longer and brings the fastest relief. While it is only temporary relief, just breaking the pain cycle is helpful... with a second pad handy you can follow it up with a second go round. It gives you some degree of control over your pain, lets you catch your breath so you can fight again another day. I was having terrible leg and back nerve pain at night, was getting little sleep but I seem to have fallen upon something that is helpful. I dug out an old electric blanket, turned it on 30 minutes or so before bed, and it has chased away the feet cramps and the leg craziness that goes with agitation of those lower back nerves. May not always work for me, may not work for everyone, but anything that works for one is worth passing along to others who are enduring nerve pain. (That's why I'm so sorry the old CEESG forum is not active as we shared everything we found that helped with any of the many problems that go along with CES.) And it was a good place to rant about the unfairness of it all and be understood rather than judged.

You have value - CES does not define who you are or your value to others. It's difficult to see the glass as half full rather than half empty but be assured the way we look at life makes a lot of difference in our ability to cope with CES. I'm no Pollyanna so when my perspective gets bogged down with the continual fight with CES I find that all I need to do is look around me to find someone who would gladly trade places with me if they could. I have only to think of my youngest daughter who died after fighting terminal cancer for over 6 years... she would gladly have changed places with me just to have more time to spend with her children...her plight changes my perspective when I get bogged down with me.

Best wishes for a happy holiday season

ejenn