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CESSG Questions & Answers

Do you have Questions about CES?

Have you or a loved one been diagnosed with CES?

Here's a place to find answers and support!

CESSG Questions & Answers
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PLEASE HELP ANYONE

I am very desperately in need of a doctor who is aware of this condition and as close to Wisconsin as I can get any input would be greatly appreciated

Re: PLEASE HELP ANYONE

Mike, the best advice I can give you is to see a good neurologist. I was lucky to have a family physician who had dealt with CES so even though I live in a rural area, I have had good treatment. But the best way to start is with a neurologist, likely you will see one at some point anyway. If you have had no suggestions from friends, the best place to look is to a teaching hospital, one that trains doctors. They usually have excellent staff well trained in their specialties and can either treat you or give you some names in the area where you live. Best advice I can give as a long time patient with CES is to go to the best you can find, even if you have to drive a couple hours to do so. Best I can do - I am from Missouri so have no idea of specific places in Wisconsin. Do try a teaching hospital if you can.

Best of luck

ejenn

Re: PLEASE HELP ANYONE

thank you so much

Re: PLEASE HELP ANYONE

University of Michigan hospital is best