Do you have Questions about CES?
Have you or a loved one been diagnosed with CES?
Here's a place to find answers and support!
My wife had surgery in September of 2017. Her bladder/bowels are working and she has very little to no feeling in that area. From the ankle area and feet, she has pin and needles and burning sensations. For the first 4 months, she had no pain anywhere from the knee down. She says she constantly has a feeling like she is sitting on a brick. It has been about 7 months since the surgery and her doctors told her a week ago that they are pessimistic about anything coming back.
I can't make any comment on the surgery but I can make observations on parathesia/anaesthesia - Dermatones affected by nerves can cause the weirdest of feelings within the lower half including legs,feet toes and buttocks, particularly the saddle area....my surgery was 9 years ago now and the progression of feelings such as numbness in both legs feet and toes is continual with the latest feeling of having an outer skin in which the bones of the legs and feet can move around inside hitting the inner sides of the skin...is that weird...you bet it is and it's something new within the last few months....So what am I trying to say....we are all affected by these dermatone nerves depending on the level that they have been damaged/irritated but the weird feelings can vary from person to person....I can say that I wished these latest feelings had never manifested as they are truly awful..
Best of luck, Alan:tophat: :relaxed:
Thank you both for the insight on what my wife is going through. Have either of you asked or been advised about seeking non-surgical procedures such as acupuncture, low laser procedures, etc? It may not even apply to this type of nerve damage but I still in curious about any information that either of you may have found.
Hi George, sorry for the delay in responding.....I have been frequently offered cortisone injections into vertebrate in at least three areas of the spine....I asked the question....what is the expected result....I was told that "It could work and relieve the constant pain" or it could make it worse or have no effect whatsoever....I refused the injections on that list of statements.
I know that some hospitals do in fact consider acupuncture but here in England all areas are not equal and different districts have different regimes/budgets in terms of what can be offered for treatments....I have found that you are really on your own and have to fight your own corner....nothing ever comes easy.
Best wishes, Alan:tophat:
Too bad they deleted hundreds of earlier posts because they would illustrate to you how common are the symptoms which your wife is experiencing. I know that doesn't help her or you but perhaps it will encourage you to know that those nasty symptoms are shared among the majority of CES patients, yes - even after surgery. As Alan said, recovery mostly depends on the degree of injury to the nerves and how soon surgery was performed. The wide-ranging variables make it difficult to even suggest clear cut answers....the one size fits all concept does not apply to CES! One really good thing is that the bladder and colon have not been adversely affected. it is another ball game when those nerves are injured to the point that function is impaired. So chalk that blessing up to very good luck! The discomfort when sitting is hard to overlook, some describe it as the nerves causing the feeling of having a tennis ball stuck inside the rectum.... very unpleasant. Those feelings might lessen in time but in time, it gets to where you ignore the feeling and just get on with life rather than worrying about it. (I hasten to say you may learn to ignore it but it is never pleasant). Please encourage your wife that there is life beyond CES, and it can be a life worth living in spite of these unpleasant changes. We learn to adapt where needed, find new ways of doing things, better ways to cope with the pain, in short, patience, hope and time do wonders for us all.
My best wishes and prayers for you both. Life is precious, don't let CES rob either of you of the blessings of each new day.:+1: :older_woman: