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CESSG Questions & Answers

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pain at night

I had my first discectomy on the 2nd dec everything seemed to go well until 8 days later when I began to be in great pain speaking to my surgeon I was advised to go back to hospital for a mri scan which showed my disc had reprolasped so I was admitted and given emergency surgery on the 14th of Dec I was in agony when I woke up from the surgery on was given strong painkillers anyway on awaking on the 16th of Dec I was feeling numb from the waist down I got up to go the toilet and wet myself after getting back onto the hospital bed my right leg became numb I was rushed off for a mri and taken back into surgery very quickly this was done by the top surgeon and I was told I had ces I have never been the same again i am a 38yr old woman who is a mother of 2 I feel like my life has been shattered I walk with a stick and struggle to do everyday tasks night time is the worse I cannot sleep I wake up in bed every night in pure agony to by lower back groin legs and hips it's so unbearable I have to get up and go and try to sleep on my living room recliner I am still on morphine but I feel like this isn't working anymore I am awaiting app for pain clinic butter as I live in a small town everything seems to take ages of suffer slight incontinence more at night I would like to hear others stories I feel alone no one in my town has even hear of ces I battle contest pain every day my husband works away but my sister has been great please can anyone tell me if there pain is worse at night
thanks
Chante

Re: pain at night

Sorry, here it is September and I just read your post. I hope things have improved since your post. You are not alone in finding pain is worse at night; there are so many variables among CES patients but pain at night is shared by most, if not all, of us. I can share a few things that have helped me not to dread bedtime. First, do NOT try to sleep on your back as it is sure way to bring on the pain. Try curling in a fetal position on one side. From there you can experiment with what works best for you. For instance, over time I discovered that extending the most painful leg works best for me; and sometimes elevating one leg with a pillow helps. You really just have to experiment until you find a position that lets you get a few hours of sleep before needing to change positions. One thing I learned first that helped start the night right is this: if pain starts get up immediately and find something to do until you get sleepy again. Do bot return to bed until you are so sleepy you can't stay awake. My experience early on was to get up at the first pain, go to the computer and do on-line crossword puzzles until I became sleepy; that still works for me. The point is to do something that forces your mind to think of something besides the pain. Crossword puzzles forced my mind to think without the excitement that comes with doing video games. After doing several I would be come bored enough to become sleepy. Extra pillows are your best friend... put them wherever it helps reduce your discomfort. For instance, if I turn on my right side, I must use a pillow to support the left leg and hip or the pain will take over very quickly. Just lots of ways you can find some ease from pain by figuring out where a pillow will support you.

Thera bead pads, which are zapped in a microwave, will ease pain when nothing else works. They are inexpensive and last for years.. right now I have one that has been in use for at least 20 plus years. it is worth its weight in gold when the pain becomes unbearable and medication doesn't help. More expensive are electric foot of bed warmers. We usually suffer more pain and muscle spasms in cold weather so those are helpful in cold weather. They can easily be pulled up under your hips to relieve back pain. Those are just a few ways that you can make nights easier and even get some sleep. they are not magic but neither do they harm you like too much pain medication does. They sound too simple but I can vouch for them as can many others. Once you get in the mindset of searching for ways to get around the pain and limitations of CES, life improves in many ways. There is life beyond CES, take it from this old great grandmother who has learned the hard way over many years. If I can offer any other experiences that might help, feel free to ask.

Ejenn